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Friday, July 17, 2009

For any Doctor,Lawyer or person who does not believe that "Fibromyalgia" exists

I played another game in the Canadian Open chess championship today, it was hardly a game, as I lost the game in 20 moves! It is the first time I have ever been checkmated in a tournament game. Why,well I was in some pretty bad pain tonight and my fibromyalgia was the reason. I was in something called "Fibro" fog, which means that I actually have reduced blood flow to my brain, and this is what happened in my game tonight:

[Event "Canadian Open 2009"]
[Site "Edmonton,Alberta"]
[Date "2009.07.16"]
[Round "6"]
[White "Einarsson, Ken"]
[Black "Mendryk, Wayne"]
[Result "1-0"]
[ECO "E21"]
[WhiteElo "1738"]
[BlackElo "1440"]
[PlyCount "39"]
[EventDate "2009.07.15"]
[EventType "tourn"]
[EventRounds "4"]
[EventCountry "CAN"]
[SourceDate "2009.07.12"]

1. d4 Nf6 2. c4 e6 3. Nc3 Bb4 4. Nf3 c5 5. dxc5 Bxc5 6. e3 Nc6 7. Be2 a6 8. O-O O-O 9. Qc2 Qc7 10. a3 Rd8 11. Ne4 Be7 12. Rd1 b6 13. b4 Nb8 14. Bb2 Nxe4 15.Qxe4 f616. Nd4 Bb7 17. Nxe6 dxe6 18. Qxe6+ Kh8 19. Rxd8+ Bxd8 20. Qe8# 1-0

The fact that all I had to avoid checkmate was to capture with my queen instead of my bishop, and I couldn't, is a testimony to what happens to people who have fibromyalgia...we have reduced blood flow to our brains! Some doctors who have fibromyalgia have written books about the condition, to help those of us who have this condition,and in one of these books, entitled Fibromyalgia and Chronic Myofascial Pain: A Survival Manual, written by Dr. Devin Starlanyl, the author first states that she is a member of MENSA. For those of you who are not familiar with MENSA, it is an organization whose members are all among the top 1% of the population in Intelligence (as measured by an IQ test). However, despite being a member of MENSA, Dr. Starlanyl states in her book, that during a time of severe pain due to her fibromyalgia, her and most people with fibromyalgia go into something called "brain fog, in other words we have trouble thinking,remembering, or doing mental tasks that all of you take for granted. Dr. Devin states that when she is in brain fog she gets lost in her small two-bedroom house!!

So for all of you skeptical doctors,lawyers,insurance company adjustors, and others who don't believe that fibromyalgia exists, I wish you could feel the way I do right now, losing a chess game simply because I could not concentrate due to my pain and due to the fact that this condition called fibromyalgia does cause neurological impairment!!! I do not know how any of you can live with yourself knowing that you deny someone's legitimate pain, suffering and mental impairment, due to a medical condition which the World Health Organization recognizes as a disease. This may sound cold and callous, but I hope those of you who do not believe in fibromyalgia, get the disease so you know how I and millions of other people feel, because we do not get the support, empathy, research dollars, or help from anyone because of human ignorance and because of hatred and prejudice directed towards us by doctors,lawyers,insurance companies and members of our own families!!

Why is it that such a lack of funding is being given to conduct research on fibromyalgia, when according to the facts, more people suffer from Fibromyalgia in the United States, than the combined total number of people who have arthritis and lupus!!

How many people have fibromyalgia worldwide is unclear, but some sources estimate that as much as two to four percent of the people in any population group may have FMS. Available data suggest that the number of persons aged 18 and older in the United States with fibromyalgia is approximately 3.7 million. (Source: excerpt from Fibromyalgia Research Challenges and Opportunities: NIAMS)

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Thoughts worth thinking about

"Our subconscious minds have no sense of humor, play no jokes and cannot tell the difference between reality and an imagined thought or image. What we continually think about eventually will manifest in our lives."-Sidney Madwed

Laws alone can not secure freedom of expression; in order that every woman and man present their views without penalty, there must be spirit of tolerance in the entire population.- Albert Einstein Too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest compliment, or the smallest act of caring, all of which have the potential to turn a life around. - Leo Buscaglia

A person's true wealth is the good he or she does in the world. - Mohammed

Our task must be to free ourselves... by widening our circle of compassion to embrace all living creatures and the whole of nature and its beauty. -Albert Einstein

The best way to find yourself, is to lose yourself in the service of others. - Ghandi

The unselfish effort to bring cheer to others will be the beginning of a happier life for ourselves. - Helen Keller

Aim for success, not perfection. Never give up your right to be wrong, because then you will lose the ability to learn new things and move forward with your life. Remember that fear always lurks behind perfectionism. Confronting your fears and allowing yourself the right to be human can, paradoxically, make yourself a happier and more productive person. - Dr. David M. Burns

Life is as dear to a mute creature as it is to man. Just as one wants happiness and fears pain, just as one wants to live and not die, so do other creatures. -His Holiness The Dalai Lama

Mankind's true moral test, its fundamental test (which lies deeply buried from view), consists of its attitude towards those who are at its mercy: animals. And in this respect mankind has suffered a fundamental debacle, a debacle so fundamental that all others stem from it. -

Milan Kundera, The Unbearable Lightness of Being

The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. -George Bernard Shaw

Ego's trick is to make us lose sight of our interdependence. That kind of ego-thought gives us a perfect justification to look out only for ourselves. But that is far from the truth. In reality we all depend on each other and we have to help each other. The husband has to help his wife, the wife has to help the husband, the mother has to help her children, and the children are supposed to help the parents too, whether they want to or not.-Gehlek Rinpoche Source: "The Best Buddhist Writing 2005 pg. 165

The hostile attitude of conquering nature ignores the basic interdependence of all things and events---that the world beyond the skin is actually an extension of our own bodies---and will end in destroying the very environment from which we emerge and upon which our whole life depends.